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Is the prevention or cure of autism a morally justified quest?
Virginia Bovell
Affecting 1% of the population, autism spectrum conditions are the focus
of extensive contemporary genetic and other aetiological investigation.
*Some scientists have raised the possibility of advances in knowledge
leading to the ability to prevent autism, while in the UK it may soon be
mandatory for couples using Pre-implantation Genetic Diagnosis to choose
embryos that are not affected with markers indicating serious
disability.* The ethical implications of advances in our genetic
understanding of autism, which may in due course lead to the possibility
for antenatal screening, are all the more significant because of the
emergence of a pro-diversity autism lobby. Its members positively affirm
not only the equal rights of autistic people to exist but – in some
quarters – assertively state the advantages of autism relative to being
'neurotypical'. To date this polarisation of perspective has not been
explored within the context of contemporary debates in medical ethics,
which is why I have chosen to investigate it in greater depth. This
research project will aim to describe and dissect the beliefs, values
and assumptions that underpin contrasting viewpoints, and to clarify
which issues need to be explicitly debated, to ensure that developments
in research, policy and practice are driven with an awareness of the
ethical underpinnings and their implications for people with autism,
their families and the wider community.
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This is the scary stuff I was worried about: the attempts to remove
types of people under the guise of the label of mental illness. It's the
first steps to eliminating autistic peoople.
But I don't know what it's like to be a motehr. I don't know what it's
like to raise an autistic child. I don't appreciate the burden perhaps.
The value of autissm is the problem. It's a serious disability but it
also helps people to be exceptional. There's a character in Boston Legal
who's diagnosed with Asperger's - which is a sort of high functioning
autism if I remember right. He's a total genius and written law, i.e.
knowing all the cases and obscure cases which no one else ahs heard of.
But he's discriminated against because he finds social relationships
hard, is weird and can be hard to get on with. One lawyer accepts him
for who he is and when he does that the disability is removed.
The dysfunction is in society, not the individual's genetic code.
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